Learn more about the CHASA Family Retreat A big thanks to Jennifer Haley, a pediatric stroke survivor, for creating these videos! CHASA Family Retreat -A look back at past retreats CHASA Family Retreat – Alabama 2011 CHASA Family Retreat […]
New Friends
Two Girls with Hemiplegia Meet at the Brookfield Zoo CHASA Pediatric Stroke Awareness Tree at the Brookfield Zoo December 2012
A Sister and a Brother and Disability – Film by Jennifer Siegel
As the parent of a child who has a disability, I don’t know that words can describe the feelings that overwhelmed me as I watched this beautiful film created by Jennifer Siegel. Jennifer produced this short film for the Cinema […]
Holly Escapes from Her Constraint Therapy Cast
My daughter, Holly, is a sweet 5-year old girl with a number of diagnoses – Left-Sided Hemiplegia, Cerebral Palsy, Epilepsy, PDD-NOS, Developmental Delays, Behavior and Sensory Issues. One day each month, we go to St. Louis Children’s Hospital for all […]
Baby Steps: Infant with Hemiplegia after Strokes Tackles Walking
By Joy Roberts At 28 weeks of pregnancy, my baby girl, Lily (nicknamed Lily Pad) had several strokes in the linings of her brain called Intraventricular Hemorrhages (IVH). Approximately five blood clots resulted because of the bleeding which resulted in loss of […]
Gabi is Riding Again
On January 24th, 2011, Gabi grabbed her head and stumbled to the ground and started to go unresponsive. Fifteen hours later, at midnight in the PICU, we found out that Gabi had had a stroke. It was sudden to say […]
16 Years Later – A Story of Hope
Braden Kara was born by C-section after a long non productive labor. Her apgar scores were both 9 and looking back, the only indication that something may not have been “normal” was a lazy looking left eye. We started to […]
Watching and Waiting
James didn’t come into this world screaming; he came into it blue, breathless and almost lifeless following a complete placental abruption. Five days later we found out that his little brain had been spared damage from the loss of oxygen, […]
Brody Had a Stroke Before He was Born – He’s a survivor!
Our son, Brody, had a stroke before he was born. This is often called an in-utero stroke or a perinatal stroke. We’re sharing our story to encourage other families and increase awareness of pediatric stroke. We’re also running for the […]
Evans Loves to Swing – And She’s a Pediatric Stroke Survivor
Evans was born a happy (and we thought) healthy little girl. When Evans was 5 months old we discovered she had very limited use of her right side and immediately looked for answers. The pediatrician informed us that our daughter […]