We have some very dedicated families who like to blog about their child who has hemiplegia. Lily’s Muscle Journey Jaxon’s Journey – Life After Perinatal Stroke Mara, Zoe, and Mia – The adventures of one mom and two girls Blissful […]
Coping
Find Support Facebook Groups – Join our general Facebook group for support and our specialty Facebook groups (your local community, homeschooling, epilepsy and more.) Coping Tips from Parents I Wish I Had Known – Parents of teens and young adults with […]
Fundraising FAQ
We’re excited that you wish to help us promote the good works of CHASA and raise funds or spread awareness about our little stroke and hemiplegia survivors! Hosting an Awareness Event, Fundraising for CHASA or Selling Products to benefit CHASA […]
Walk or Run for CHASA Kids
Raising Pediatric Stroke or Hemiplegic Cerebral Palsy Awareness – Helpful Hints for Participating in an Established Walk or Run Check with your physician to make sure you’re in great shape and can participate in an athletic event like a walk […]
Volunteer
We love our volunteers! CHASA is proud to have a growing number of committed compassionate volunteers that assist our families and children in many ways. In honor of the many volunteers with which CHASA has been blessed, we extend a […]
Disability Pride
Disability Pride Why disability pride? To promote the belief that having a disability or difference is a natural part of human diversity and to celebrate that diversity. This does not follow the “medical model” that views people with differences as […]
Bullying
Children and youth with disabilities are at a higher risk of being socially excluded and bullied while at school compared with their typically developing peers. One study reports that youth also encounter social exclusion from their teachers and that teachers’ […]
Mental Health and Behavior
Some parents report that their child with hemiplegia experiences a variety of emotional and behavioral challenges. There is very little information available regarding behavioral issues that specifically deals with children who have hemiplegia or stroke. The information provided on this […]
Our Kids Rock!
When the doctor tells you that your infant or child has survived a stroke or that they may face life with part of their body paralyzed, time seems to come to a screeching stop. Suddenly those dreams that you once […]
Oliva’s Streak for Pediatric Stroke Blog Day 2
Before my little brother had a stroke, I didn’t even know what a stroke was. Now I know that kids have strokes. When people ask me why Evan wears a brace or walks a little funny, I make sure I […]
Speech Apraxia and How Sign Language Changed Our World
Our son has been diagnosed with Speech Apraxia for about a year now. It has once again changed our lives – in a different way. For those who don’t know what speech apraxia is, Speech Apraxia is a motor speech disorder. […]
Neuropsych – Our Experience
When our doctors first started talking about visiting a Neuropsych, they were having conversations with each other, while we were in the room. “Do you think a neuropsych would help?” “Yes, but not yet”… or “Has he been to neuropsych […]
CHASA Streak for Pediatric Stroke Awareness
It’s time to get your streak on. How will you Streak for Pediatric Stroke? Pediatric Stroke Survivors often have multiple disabilities. If these little stroke survivors can do some of the hard things they do every single day of their […]
Introducing Evan – And My Streak for Pediatric Stroke
February 21st. It’s the day that changed our lives forever. I can still remember the phone call I received from the doctor’s office – the nurse telling me that the pediatric neurologist had reviewed the results of our son Evan’s […]
Disabled or Typical – The Balancing Act
Let me be clear. My son is fine. And if you don’t believe me, ask anyone around me. “Your baby had a stroke? Really? Thank goodness it didn’t really affect him!” “Well, you can hardly tell he doesn’t use his […]
Meet Helon
I have been recently interested in blogging for CHASA so I emailed them and they were excited to read my articles! They invited me to be a regular blogger for CHASA. I will be blogging a lot about my life […]
Cerebral Palsy: Behavior, Anger, and Decision Making
Angry Fits and the Decision Spiral of Doom I belong to a CHASA (Children’s Hemiplegia and Stroke Association) Facebook group called ‘Hemikids and Pediatric Stroke Survivors’. Many of the members are parents of children with hemiplegia who are looking to […]
The Great (Culture) Wall – Disability and Society
I lost a friend once because I have Cerebral Palsy (CP). She wasn’t a particularly close friend, more a “wave and chat for a bit after Mass” friend. Either way, though, it stung. It wasn’t her fault, of course, but […]
Things I have Learned From Having Hemiplegic Cerebral Palsy
I will never confuse my right and my left. Mouths are secretly hands that never grew fingers, and can be used as such. All doorknobs should be levers. Seriously. You try opening a doorknob with your fist when your other […]
The Importance of Giving Up
We live in a culture that tells us nothing is impossible. We’ve all heard it countless times: ‘The sky’s the limit’. ‘You can do whatever you set your mind to’. ‘Every great achievement was once considered impossible’. And, perhaps most […]
Adaptation versus Innovation
I was about seventeen when I learned that most people put on their socks with two hands. It probably sounds ludicrous but it’s true: my aunt was visiting and we were about to head out for something so I was […]
Pediatric Stroke Awareness – Got a Minute?
You can spread the word that Kids Have Strokes, too. Don’t have time? Try the 1 minute ideas. More time? We have several creative projects for you to dive into. CHASA 2014 Pediatric Stroke Fact Sheet 1 Minute Tell someone […]
Constraint Therapy – We Made It!
We made it. We survived 16 days of constraint induced movement therapy (CIMT). Whew. Now it’s about managing my expectations, and my disappointment, over what “stuck” and what didn’t. And disappointed is exactly what I felt. Within five minutes of […]
Constraint Induced Movement Therapy – Henry is Using His Hand
Holy cow, it appears to be working! Constraint therapy actually appears to be working! Henry’s reaching with his affected arm, holding objects in his affected hand and actually POINTED his index finger upon request. HOLY COW. I don’t even know […]
