On 13 September, 2011, we were blessed with a perfect baby boy – and a not so perfect birth story. At 41 weeks I was finally induced. The birth was stressful, his umbilical cord was wrapped around his neck and […]
Childhood Stroke Awareness Picnic – DC, MD, VA, PA
Join families at the 11th annual Washington DC/Maryland/northern Virginia/southeast Pennsylvania Childhood Stroke Awareness Day Mini-Walk and Picnic Sunday, May 6th, 2012, 3 pm Family and friends are welcome to join us. We will be meeting in front of the Great […]
A Day of Specialists
This past Wednesday I took Kohl to CP (Cerebral Palsy) clinic at Children’s. This was our first time there since our move. Traffic was awful, and I was late for starters. Apparently, I can still get lost even with my […]
Childhood Stroke Awareness Picnic – Long Island, New York
Join us for the 3rd Annual New York Childhood Stroke Awareness Picnic! We had so much fun the last two years, we’re doing it again! This year’s picnic will be held on July 8, 2012 at Wantagh Park (Long Island, […]
Pediatric Stroke Streak – Sidewalk + Chalk
Get Your Streak on for Pediatric Stroke Awareness Month… It starts in May! Pediatric Stroke Awareness Month Idea #1 Write some facts about pediatric stroke on a sidewalk. It’s fast, easy, cheap, and you can reach a lot of people […]
A Major Part of Our Village – Raising a Child With Special Needs
We’ve all heard that it takes a village to raise a child. When you are raising a child with special needs, that expression becomes a complete reality. My husband and I both work full-time and have very fulfilling careers, so […]
Big Sister Olivia Streaks for Pediatric Stroke – Day 4
I know my Mom is going to write about how amazing Bright Ideas is tomorrow, but I can’t wait to go back this summer. I’m excited to see my old friends and go swimming. From Olivia, Evan’s 7 year old […]
Those Three Little Words
Those Three Little Words Evan: “I love you, Mom.” Me: “I love you too, Evan” Evan: “I love you, Mom.” Me: “I. Looovvvve. Youuuuu.” Evan: “Mom, you forgot to say something.” Me: “I love you TOO.” […]
Name the New Children’s Hemiplegia and Stroke Association Mascot
We need your help! CHASA has been searching for a mascot and we were inspired by a very special penguin who lives at the Santa Barbara zoo. His name is Lucky, and he wears a special shoe like the ones […]
Pediatric Stroke Streak – Sometimes You Just Have to Shake Your Booty
Okay, follow me with this one. I believe in the power of a laughter and a sense of humor. Don’t get me wrong – there is nothing funny about the situation that Evie is in – it is very serious, […]
Big Sister Olivia Streaks for Pediatric Stroke – Day 3
Not sure what to say about this drawing today… Except, maybe that even when you are a kid, sometimes you wish you could be someone else. We all have good days and bad days. So, let’s try to be nice […]
Nothing Better Than a Great Snuggle When You Need it Most…
One of the things that I remember most about Evan from when he was an infant was how much he loved to be held and snuggled. I vividly recall, during my 10 weeks of maternity leave, that each day, Evan […]
One Handed Can Opener
Kids with hemiplegia want to be independent and the kitchen is a place where they face many challenges. Traditional can openers are very difficult to use with one hand. We found a simple, inexpensive product, the One Touch Can Opener, […]
Children With Hemiplegia Cerebrate Life
Happy news from families of children who have hemiplegia. We appreciate the small things in life! Children with hemiplegia often have multiple disabilities including difficulty using one hand, weakness on one side, seizures, vision, speech, learning, behavioral and emotional […]
Pediatric Stroke Survivor has the Heart of a Champion
This was not what we expected. I had a perfectly healthy 7 month old who just happened to have a cold and was teething at the same time. This caused dehydration and then he suffered a stroke. We were fortunate […]
