For those of you who don’t know my almost 10 year old son, Nick, he has met many challenges. Born with transposition of great arteries, cardiac arrest, right side stroke, hydrocephalous and developmental delays, he has met many challenges that […]
Individualized Education Program Examples
Examples of Individualized Education Programs for students with a diagnosis of hemiplegia, hemiplegic cerebral palsy, or hemiparesis and related disabilities. IEP and psychological report for Preschool student, age 2, with hemiplegia IEP for Pre-Kindergarten student, almost 3 years old, with […]
Research Opportunity – Children with Hemiplegia and Stroke ages 5 to 17
The Children’s Hemiplegia and Stroke Association (CHASA) is assisting the Children’s Hospital of Philadelphia (CHOP) in recruiting participants for a clinical research trial for children with hemiplegia due to stroke. Part of CHASA’s mission is to assist pediatric stroke researchers […]
Pediatric Stroke – Dad’s Perspective
My wife gave birth to our son in an emergency c-section after she didn’t feel the baby moving the last day. We were right at the due date so he was full term. The doctors kept him in the NICU […]
Lunch Trays, Milk Cartons, and Kindergarten: One handed
I have a year before my son, who has left hemiplegia, starts all day kindergarten, and I’ve recently been having an anxiety attack about him having to carry a lunch tray, open a carton of milk, cut up his own […]
Hemiplegia, Hemiparesis, Hemiplegic Cerebral Palsy – What’s the difference?
“What is the difference between hemiplegia, hemiparesis, and hemiplegic cerebral palsy?” This is a question commonly asked by parents of kids after they hear it from a doctor or therapist or read it in an educational assessment, insurance claim, or […]
Apps for Children with Hemiplegia
If you have an iPhone or iPad you may find the following list of Facebook pages or groups helpful. Aileen Kavanagh-Kaiteris created this lists and says that she finds useful apps from the posts, comments, giveaways, app parties, etc., found […]
Climbing Sports for Youth with Physical Disabilities – Free Class Now Open
Check out the new climbing class at Blaze Sports! Blazing New Trails is a program that will introduce youth with physical disabilities to a unique, life changing active experience through the sport of climbing. Climbing fosters a variety of unique […]
There’s No Dishonor in Having a Disability
One of our young adults who has a diagnosis of hemiplegia due to a perinatal stroke sent this link to us today. She says that, “Words cannot describe how much I love this speech.” We love it, too, and hope […]
Paint for Pediatric Stroke
If you’re near Richmond, Virginia on August 27th, join us for a fun-filled and creative evening! We’ll paint Sweet Cow and learn more about the Children’s Hemiplegia and Stroke Association (CHASA), a national charity that helps children with hemiplegic cerebral […]
Cerebral Palsy: Behavior, Anger, and Decision Making
Angry Fits and the Decision Spiral of Doom I belong to a CHASA (Children’s Hemiplegia and Stroke Association) Facebook group called ‘Hemikids and Pediatric Stroke Survivors’. Many of the members are parents of children with hemiplegia who are looking to […]
Newly Diagnosed with Hemiplegia or Perinatal Stroke
What do I do next? The first year after you’re told that your child has a brain injury is a whirlwind of tests, therapies, doctors, therapists, insurance, and the many emotions that you go through. You didn’t expect this, right? […]
The Great (Culture) Wall – Disability and Society
I lost a friend once because I have Cerebral Palsy (CP). She wasn’t a particularly close friend, more a “wave and chat for a bit after Mass” friend. Either way, though, it stung. It wasn’t her fault, of course, but […]
Using Tools – Cerebral Palsy Doesn’t Slow Down Luka
We’re doing some renovations and my sweet boy asked to try the drill. He put in about 15 screws… with success!! He’s so proud! His left hand is a helper but you can see he can open it well and […]
