This project is now closed. A big thank you to the hundreds of participants who assisted with this very important research!
The Children’s Hemiplegia and Stroke Association, CHASA, is assisting Dr. Kenda Grover and colleagues at the University of Arkansas with recruitment for a wellness and adult learning study. Parents whose child has had a stroke are invited to participate in the study.
Invitation to Parents Whose Child Has Had a Stroke
My name is Kenda Grover and I am a faculty member at the University of Arkansas. Along with colleagues, I am conducting research on the experience of parents whose child has had a stroke. We are interested in the relationship between parents’ wellness and adult learning. For the purpose of this study, wellness includes the social, physical, and coping aspect of a person’s life, to name a few of the factors. We hope what we learn from this project will help other parents, as well as the medical community, understand how stroke impacts the lives of the children and their families.
We are looking for participants who are willing to complete an online survey instrument. You will be asked to respond to several demographic questions about, for example, your child’s age when the stroke occurred, and questions about you and your overall well-being.
The survey should take no more than 10 minutes of your time, and there is no penalty for not completing it. Participation is voluntary, and you may choose at any time to exit the site. By completing the survey, you are giving us your consent to use your responses; however, these responses are not reported individually. You will not be asked to provide any identifying information on the survey instrument.
To begin, simply click on the following link:
http://transform.mindgarden.com/survey/13848
If you have any questions about the study or would just like more information, please email me at [email protected], or you may call my office phone at 479-575-2675.
For questions or concerns about your rights as a research participant, please contact Ro Windwalker, the University’s IRB Coordinator, at (479) 575-2208 or by e-mail at [email protected].
Sincerely,
Kenda
CHASA’s Role
As part of CHASA’s mission to increase scientific and medical knowledge regarding childhood hemiparesis, hemiplegia, hemiplegic cerebral palsy, pediatric stroke, infant stroke, and other causes of hemiplegia in children, we continues to assist investigators in gathering information that may contribute to knowledge in these fields. CHASA does not endorse these studies, but simply provides this information as a courtesy to families and researchers.
