Cerebral Palsy: Behavior, Anger, and Decision Making

Angry Fits and the Decision Spiral of Doom I belong to a CHASA (Children’s Hemiplegia and Stroke Association) Facebook group called ‘Hemikids and Pediatric Stroke Survivors’. Many of the members are parents of children with hemiplegia who are looking to […]

Newly Diagnosed with Hemiplegia or Perinatal Stroke

What do I do next? The first year after you’re told that your child has a brain injury is a whirlwind of tests, therapies, doctors, therapists, insurance, and the many emotions that you go through. You didn’t expect this, right? […]

The Great (Culture) Wall – Disability and Society

I lost a friend once because I have Cerebral Palsy (CP). She wasn’t a particularly close friend, more a “wave and chat for a bit after Mass” friend. Either way, though, it stung. It wasn’t her fault, of course, but […]

My Baby had a Stroke – A Mom Copes

Allison Bemiss lives in southern Kentucky with her husband, Daniel, and two sons, seven year old Elijah and two year old Jonah. Just after Jonah’s first birthday, the family learned he was a pediatric stroke survivor. He suffered an in-utero […]

Stroke in Children Gene Mutation – NIH Seeking Participants

The National Institutes of Health is looking for children with young age of onset strokes, with first stroke occurring after age 3 months.  The patients they have seen so far have had recurrent strokes over the years.  All have evidence […]

How to Wear a Shirt and an Arm Cast in Cold Weather

Maybe your child with hemiplegia has broken his arm, is participating in constraint induced movement therapy, or may be wearing a special cast for stretching or following surgery. Below you’ll find one mom’s solution to what to wear in cold […]

Adapting Zipper Pulls for Children with Hemiplegia

Adapting Zipper Pulls for Children with Hemiplegia The photo shows a handle that has been added to a zipper pull. This photo shows a longer ribbon that has been added to a zipper pull. More Adaptive Clothing Ideas for Children […]

New York Childhood Stroke Picnic

Mark your calendars for the New York Childhood Stroke Picnic!! Our 2013 picnic is officially booked Sunday July 7th, 11am We will be in the same space as last year. Wantagh Park 1 King Road Wantagh, NY Covered picnic area […]

Basketball Manager Thomas Adams

Thomas and his parents attended the very first Children’s Hemiplegia and Stroke Association Family Retreat in Georgia in 2001. He was a fun loving little boy and had turned into a young man with a love of basketball. Thomas is […]

Cerebral Palsy Hand Grasp Study – Participants Needed

Volunteers needed for Cerebral Palsy Grasp Study – Ages 6-13 The purpose of this study is to determine how your child positions his or her hand to pick up different shaped objects. This study will provide information about how your […]

Constraint Therapy – We Made It!

We made it. We survived 16 days of constraint induced movement therapy (CIMT). Whew.  Now it’s about managing my expectations, and my disappointment, over what “stuck” and what didn’t. And disappointed is exactly what I felt. Within five minutes of […]

Survey! What’s important to you?

In keeping with CHASA’s mission of assisting pediatric stroke or hemiplegia researchers, we are making a survey from Teachers College, Columbia University available to you. Information about the survey is below. Dear Caregiver, Your responses to this brief questionnaire will […]

Selecting a Doctor or Therapist for Your Child with Hemiplegia

Hiring a therapist or physician to treat your child who has hemiplegia is a big commitment of time, effort, and money. It’s important to find someone who is both experienced and whose personality is a good fit for you and […]

Constraint Induced Movement Therapy – Henry is Using His Hand

Holy cow, it appears to be working! Constraint therapy actually appears to be working! Henry’s reaching with his affected arm, holding objects in his affected hand and actually POINTED his index finger upon request. HOLY COW. I don’t even know […]

I will fix you – Constraint Induced Movement Therapy

Today we had a cast put on Henry’s “good” arm to force him to use his “affected” arm. Constraint Induced Movement Therapy. He was ready for it, we had been talking about it for a couple of weeks before it […]