Pediatric Stroke Awareness Month – Your Facebook Status

Pediatric Stroke Awareness MonthWe know you’re busy, so we’ve developed 31 days of Pediatric Stroke Awareness Month ideas for your Facebook status.

Cut and paste these into your status each day.

Add chasa.org to any posts that don’t have other links so people can find more information.

Ask your friends to share your posts.

Pediatric Stroke Awareness Month Facebook Status Posts

  1. May is Pediatric Stroke Awareness Month and today I honor [name], my pediatric stroke SURVIVOR! [post with photo of your survivor]
  2. Babies have strokes. Kids have strokes. Teens have strokes. Some babies have a stroke before they’re even born. [Name of your child] had a stroke [before he/she was born, at 1 year, etc.]
  3. Babies and kids have strokes. Get the facts! http://chasa.org/wp-content/uploads/2011/08/CHASA-2015-infographic-final.pdf
  4. If a child under the age of 18 months seems to be a lefty or righty, check in with your state’s early intervention program or a pediatric neurologist. Early hand preference may mean an early stroke.
  5. Some pediatric stroke survivors have learning difficulties. Learn more about education law and advocacy for children with disabilities. http://www.wrightslaw.com/
  6. Between one in 1600 and one in 2800 babies will have a stroke before they’re 30 days old. Why don’t we have an exact number? More research is needed to determine how often strokes occur in this perinatal period.
  7. My daughter is a pediatric stroke survivor and this does not define her. She loves [fill in hobbies and interests – reading books, swimming and going to movies].
  8. Pediatric Stroke Fact: Approximately 15% of all ischemic strokes occur in young adults and adolescents. Younger people are less likely to call 911 or go to the ER for stroke-like symptoms because they do not realize they are at risk of stroke. Learn more: http://www.neurology.org/content/81/12/1089.abstract
  9. Pediatric Stroke Fact: Perinatal stroke is the most common cause of hemiplegic cerebral palsy. Learn more about hemiplegic cerebral palsy at http://chasa.org/medical/hemiplegia/
  10. CHASA, an 19 year old nonprofit organization, connects pediatric stroke survivor families through online discussion groups, groups and fun community outings, Mom weekends and an annual family retreat. Check out how CHASA can help you or how you can help! http://chasa.org
  11. Pediatric Stroke Fact: Delay in diagnosis or misdiagnosis of stroke in children is still common.
  12. Pediatric Stroke Fact: The exact costs of childhood stroke to families and society are unknown at this time. One study found that the average cost of medical care in the first year after childhood stroke is nearly $42,000, and the subsequent health care needs of these children can last decades, even far into adulthood. Learn more: http://www.ncbi.nlm.nih.gov/pubmed/18032740
  13. CHASA, a 501(c)(13) nonprofit brings pediatric stroke survivors and children who have hemiplegic cerebral palsy together for fun and support at an annual family retreat. In 2015, CHASA will host five regional summer reunions. Learn more: http://chasa.org/chasa-family-reunions/
  14. Forty percent of families with children with special health care needs experience financial burden related to their child’s condition. At the same time that families of children with disabilities experience greater financial demands, nearly 30% of them also contend with loss of income secondary to the need to reduce or eliminate employment. http://pediatrics.aappublications.org/content/128/4/795.full.pdf+html
  15. Suggestions for pediatricians during Pediatric Stroke Awareness Month. Provide a medical home for children with disabilities that emphasizes the family as a valued partner in decision-making, coordinates care with subspecialists, and links families with community-based services.
  16. Check out the beautiful children in the Pediatric Stroke and Hemiplegia Awareness Montage
  17. This weekend is a time to recognize the siblings and special friends of your child who has a disability. Share photos and celebrate!
  18. Suggestions for pediatricians during Pediatric Stroke Awareness Month. Recognize the unique needs of parents and siblings of children with disabilities, and offer strategies for them to promote their own physical and emotional health and well-being, including links to family support groups and mental health services.
  19. Children with disabilities are more frequent targets of bullying and more vulnerable to bullying by typically developing peers. Teachers and parents of children without disabilities have the opportunity to implement programs that prevent bullying. http://www.stopbullying.gov/
  20. Babies and children who’ve had a stroke may have multiple disabilities, including cerebral palsy, seizures, vision and other sensory differences, learning differences, speech and language differences, and emotional or behavioral differences. May is Pediatric Stroke Awareness Month. http://chasa.org/medical/
  21. Since 1996, the Children’s Hemiplegia and Stroke Association (CHASA) has served as a source of help and hope for families of children who have survived an early brain injury, resulting in hemiplegia or hemiparesis. Learn more about CHASA programs here: http://chasa.org/wp-content/uploads/2011/08/CHASA_Brochure2.pdf
  22. During Pediatric  Stroke Awareness Month, we honor the two women who started it all in 1996 – Nancy Atwood and Joni Stasiak, founders of CHASA, the Children’s Hemiplegia and Stroke Association. These two moms found each other online back in the day of dial up internet access. Nancy learned to code websites by hand, using a book from the library and Joni had the vision to host the first CHASA Retreat. Where would we be without them?
  23. During Pediatric  Stroke Awareness Month, we honor the children of the CHASA Founders.
  24. During Pediatric  Stroke Awareness Month, we honor Kevin Dyer, the attorney and pediatric stroke survivor who said those famous last words…”Let’s turn this into a nonprofit.”
  25. During Pediatric  Stroke Awareness Month, we honor those therapists who love our children as much as we love them. (list and tag your people)
  26. During Pediatric  Stroke Awareness Month, we honor those educators who love our children as much as we love them. (list and tag your people)
  27. During Pediatric  Stroke Awareness Month, we honor those medical professionals who love our children as much as we love them. (list and tag your people)
  28. During Pediatric  Stroke Awareness Month, we honor the researchers who are dedicated to finding ways to make life better for our children.
  29. During Pediatric  Stroke Awareness Month, we honor the moms and dads who pull themselves through heartache and joy each minute of the year.
  30. During Pediatric  Stroke Awareness Month, we honor Nancy Atwood and Heidi Jameson – two moms who were tired of hearing “I didn’t know a baby could have a stroke” and decided to create the first Pediatric Stroke Awareness Day in 2002.
  31. Thank you for helping us educate the community about pediatric stroke and related disabilities. Thank you for raising funds for CHASA so we can continue our mission of improving the lives of children and adults living with a diagnosis of hemiplegia due to stroke and other causes. And most of all, thank you for helping us reach so many families with our message that they do not need to travel this journey alone.

Learn more about pediatric stroke

Learn more about pediatric stroke awareness