Children's Hemiplegia and Stroke Association

"When you dream of becoming a parent, you never think that "you" will become the parent of a child who has a disability. At first it is devastating, for you. You lay on a guilt trip, cry your eyes out, and wonder if you can handle this. You may think the worst. And when all that is through you will look into those baby eyes and say this makes me love you no less, only more.

You will find strengths inside yourself that you never knew you had. Take one day at a time, and remember that this child is your miracle. Best of luck to a miraculous future, and welcome to CHASA!" - Kristy (written by a parent from the Hemi-Kids email list)

Parents of a child who has recently received a diagnosis of hemiplegia or stroke often have questions about the condition, the prognosis, and available treatments.

Dealing with your emotions	Things that you need to know
Stories of Hope - We want to share our personal stories of hope with you. By sharing your experiences, hopes, and frustrations, you'll join a group of parents who understand this journey and you can pass on hope to new parents..	Early Intervention Services can make a significant difference in your child's development. These services are available for children from birth up to age 3 who have developmental delays or have a physical or mental condition known to cause developmental delays. Every state has these services and they are usually free or on a sliding fee scale.
Emotions you may feel Grief - you may cycle in and out of grief as your child goes through different life stages Denial Acceptance Joy Guilt Blame Sadness Worry Anxiety Happiness These are normal feelings, but if you start to feel that you need help in dealing with these feelings, please seek a professional counselor who can help explore healthy ways of coping.	Types of Healthcare Professionals Children with hemiplegia may need to see different types of health professionals. Some children are seen by: Pediatrician Pediatric Neurologist Epileptologist Physiatrist Neuropsychologist Educational Psychologist Psychiatrist Hematologist Orthopedic Surgeon Orthotist Ophthalmologist Physical Therapist Occupational Therapist Speech Therapist Developmental Pediatrician
Comfort and Support - This section of the website will help you find support. Other sources of support might be: Spouse Extended Family Church Friends Support Groups Respite Counselors or Therapists	Finding childcare for your special needs child Finances Private Insurance Medicaid Waiver Programs Family and Medical Leave Act - Covered employers must grant an eligible employee up to a total of 12 workweeks of unpaid leave during any 12-month period for care of your newborn, to care for an immediate family member with a serious health condition, or other reasons.
Challenges some, but not all, children with hemiplegia may experience Spasticity - tight muscles Orthotics - foot or hand brace Epilepsy - seizures Learning Differences or Delays Language Delays Behavioral Challenges	Infant Development - for typically developing infants - children with hemiplegia develop on their own time table. Use this chart to learn about typical development, but realize that your child will probably choose his or her own timetable and that's what is right for them.
Disability Links	Definitions of medical terms

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The information contained in this Children's Hemiplegia and Stroke Association (CHASA) Web site is not a substitute for medical advice or treatment, and CHASA recommends consultation with your doctor or health care professional.

newly diagnosed